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Myasthenia Gravis: Information and Resouces

compiled by Stephen Ross, 2021

According to the National Institute of Neurological Disorders and Stroke, Myasthenia Gravis (MG) is "a chronic autoimmune, neuromuscular disease that causes weakness in the skeletal muscles that worsens after periods of activity and improves after periods of rest."

Myasthenia gravis (my-us-THEE-nee-uh GRAY-vis) is characterized by weakness and rapid fatigue of any of the muscles under your voluntary control. It's caused by a breakdown in the normal communication between nerves and muscles.

There's no cure for myasthenia gravis, but treatment can help relieve signs and symptoms, such as weakness of arm, leg and neck muscles, double vision, drooping eyelids, and difficulties with speech, chewing, swallowing and breathing.

This rare disease affects both men and women and occurs across all racial and ethnic groups. It is most common in young adult women (under 40) and older men (over 60), but it can occur at any age, including childhood.


Websites:

Myasthenia Gravis Foundation of America (MG)

Myasthenia Gravis Association (MGA) Note: unsecured Website

Myasthenia Gravis (Mayo Clinic)

Myasthenia Gravis (MG) (Cleveland Clinic)

Myasthenia Gravis Fact Sheet (NINDS)

Myasthenia Gravis at Muscular Dystrophy Association (MDA)

Myasthenia Gravis (National Organization for Rare Diseases)

Myasthenia Gravis (MedlinePlus)

Myasthenia Gravis (Office of Women's Health, U.S. Department of Health and Human Services)

The Australian Myasthenic Association in NSW

Neuromuscular: Myasthenia Gravis Treatments

Thymectomy for Myasthenia Gravis (Cleveland Clinic)

International Consensus Guidance for Management of Myasthenia Gravis (Neurology) also 2020 update

Book

Coping With Myasthenia Gravis: Mastering Your Life by Aziz Shaibani... Bloomington, IN: AuthorHouse, 2021. 334 pages. Information about MG including history, diagnosis, treatment and separate chapters of 50 MG patients telling their stories, along with expert comments at the conclusion of each. Recommended. Excellent read and resource.

Other

Cautionary Drug List (Myasthenia Gravis Association) pdf

Cautionary Drug List (Myasthenia Foundation of America) pdf

Emergency Alert Card 2021 pdf

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